86 Days to Go…

Today is February 12, which means that in 86 days, #werun22q will be toeing the line of the Ragnar Cape Cod road race! As we’ve updated on Facebook, this year #werun22q is proud to field TWO teams of runners – that’s 24 people dedicated to running for our community, raising funds, and spreading awareness!

It’s been an adventure here; as a team, we’ve been brainstorming about a way to raise funds that would help as many people in the 22q community as possible! Just like the community we are looking to help, we live all over the country and our children are treated at different 22q clinics – therefore choosing just one felt impossible!

And then we realized. once we got our children past the life-threatening/life-altering complications of 22q (open heart surgeries, palate repairs, feeding tubes, etc) one thing remained – the hopes and dreams that our children would one day become fully integrated members of their communities. We want our children to be successful, have families, hold jobs, be happy; all ordinary parenting wishes.

We chose the UC Davis MIND Institute to be our beneficiary for the 2020 #werun22q Ragnar Relay because their mission aligns with ours. We established the We Run 22q Innovation Fund to help families who are coming to the clinic to participate in research studies get additional information, to help the researchers and medical team of the clinic answer questions and begin research projects in order to receive additional grant money to continue these projects, and to allow the team to bring in more patients from out of town who might not ordinarily have a chance to see this wonderful clinic and it’s amazing team.

We hope that you’ll consider giving a gift in your loved one’s name. We are humbled and thrilled to run for them.

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